So this Sunday we'll be loading the car bright and early and hitting the road to Emerald Bay so I can run this course again. The best part about this race is that it ends on Lester Beach. Literally ON the beach where the Peanut can build endless sandcastles. Hopefully the weather cooperates.
The Saturday before the Buffalo Stampede race we met Jersey Girl and her son LilDude and Scrapbook and her family downtown for the Pro-Cycling Races. It was a fun time. The kids really enjoyed watching the races.
Squeaker was in awe ...
The Peanut busted out the cowbell...
"helping" LilDude not touch the fence...
Showing him how fast she can run...
Trying not to think he's pretty funny...
Yet secretly, I think they have a friendship...
Meanwhile......
The cyclists raced on...
The Peanut climbed trees...
and Vans.
Overall, it was a great Saturday evening. Both kids were fast asleep the minute we arrived home. I just love weekends like the past two we've had ... we're very lucky and blessed.
*******
On a more serious note, I would like to send everyone to The Dylan Flinchum "Rock On" Foundation Facebook page. Please "Like" this page and if you can manage, please look at the page's "Info" tab about sending donations.
Dylan Flinchum is the nephew of my very best friend and the son to my long-time childhood neighbor and friend. This family has been in my life since I was 3 months old living next door to me. Matt, my friend and Mike, Dylan's father have been like brothers to me. Please help support Dylan and his family any way that you can.
This is taken directly from the Facebook Page ...
Shortly after Dylan’s second birthday in January, he began to experience difficulty walking. After being referred to several medical specialists (including some of the top neurosurgeons in the country at Cornell Medical Center in NYC) it was determined that Dylan had a condition known as Chiari malformation. Dylan underwent surgery in the spring and was expected to make a full recovery.
After several weeks of physical therapy, Dylan was not progressing as expected and began to show symptoms that were unrelated to the malformation. A follow up MRI was completed and doctors were shocked to significant change in Dylan's white brain matter. After getting the initial diagnosis from Cornell, Mike and Melissa traveled to the Children’s Hospital of Philadelphia (CHOP) where it was confirmed that Dylan is suffering from a degenerative disease known as metachromatic leukodystrophy, often referred to as MLD.
As they all prepare to cope with this horrible disease, everyone is focused on one thing, Dylan. Their goal is to make Dylan as happy and as comfortable as possible while bringing as many smiles to his face as they can.
In order to best acheive this, they will likely be missing extended periods of work as well as making many trips back and forth to Philadelphia to be sure that they are providing Dylan with the best care that is offered at CHOP, the top pediatric hospital in the country. Dylan will also require special medical equipment and various types of therapy to make him more comfortable as the disease continues to progress.
The Dylan Flinchum “Rock On!” Foundation has been created as we all want to help ease just some of the burden Mike and Melissa are facing so that they can devote all their time and effort on Dylan. A Facebook page has all been created so please send your kind words and prayers to Mike and Melissa on the Foundation Page (if you have a Facebook account) as they need all of our love and support. We are in the process of planning a Music fundraising event later this fall and hope to organize a walk in the spring.
In the meantime if you would like to contribute to the Foundation or have any other questions, please send an email to:
dylanrockon@yahoo.com
Please send a check to:
The Dylan Flinchum “Rock On!” Foundation
14 Lenape Drive
Stanhope, NJ 07874
After several weeks of physical therapy, Dylan was not progressing as expected and began to show symptoms that were unrelated to the malformation. A follow up MRI was completed and doctors were shocked to significant change in Dylan's white brain matter. After getting the initial diagnosis from Cornell, Mike and Melissa traveled to the Children’s Hospital of Philadelphia (CHOP) where it was confirmed that Dylan is suffering from a degenerative disease known as metachromatic leukodystrophy, often referred to as MLD.
As they all prepare to cope with this horrible disease, everyone is focused on one thing, Dylan. Their goal is to make Dylan as happy and as comfortable as possible while bringing as many smiles to his face as they can.
In order to best acheive this, they will likely be missing extended periods of work as well as making many trips back and forth to Philadelphia to be sure that they are providing Dylan with the best care that is offered at CHOP, the top pediatric hospital in the country. Dylan will also require special medical equipment and various types of therapy to make him more comfortable as the disease continues to progress.
The Dylan Flinchum “Rock On!” Foundation has been created as we all want to help ease just some of the burden Mike and Melissa are facing so that they can devote all their time and effort on Dylan. A Facebook page has all been created so please send your kind words and prayers to Mike and Melissa on the Foundation Page (if you have a Facebook account) as they need all of our love and support. We are in the process of planning a Music fundraising event later this fall and hope to organize a walk in the spring.
In the meantime if you would like to contribute to the Foundation or have any other questions, please send an email to:
dylanrockon@yahoo.com
Please send a check to:
The Dylan Flinchum “Rock On!” Foundation
14 Lenape Drive
Stanhope, NJ 07874
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